What do the Mighty DUKs think?
“Medical records only exist so that your healthcare professionals can communicate with each other over your care and medical treatment, right? Wrong. They are your results, which can also help you manage your diabetes. My Diabetes My Way (MDMW) has helped me hugely by getting involved in my own care, and helping me understand my health.
The first time I saw it all – all my results since diagnosis displayed in numbers, graphs, text, diagrams, I was terrified. I got quite emotional looking back over the years. It’s easy when you are sitting in front of your Doctor who is telling you that your HbA1c has gone up again, to shrug it off and forget about it. But there is something incredibly powerful about being able to see all your results over time in the one place. It allows a sense of reflection and lets you see patterns that you may not get when you are on the spot sitting in front of a healthcare professional.
It also allowed me to monitor changes over time. It’s not only useful for looking back at previous results, but offers an opportunity to set targets and think about the progress you would like to make going forward. I will often have a look at my results in the lead up to going for my next clinic appointment, to help me identify any issues I would like to bring up.
I have been told before that young people with Type 1 diabetes don’t have the medical expertise to understand or interpret their results. I don’t believe this to be true. But it would make things easier for young people if healthcare professionals didn’t throw medical jargon at us. We have all been to clinic, and left without knowing why they took your blood, what your results were, and what it all means. This isn’t necessarily because we don’t understand, it’s because we are trying to absorb 6 month’s to a year’s worth of information in a 20 minute appointment! MDMW gives a clear description of what each test is and what these values mean in terms of your health, so that you can fully understand where you sit and how to move forward.”
"MDMW is an online tool that allows you to access your diabetic record from diagnosis. It allows you access to see what the doctor seeing during a clinic in an easily understood way. You are able to view:
•My details – All your details such as date of birth, address, GP address, year of diagnosis, etc
.•My lifestyle – Height, Weight, BMI, smoking status, allergies and a food diary
•My results – HbA1c, Blood pressure, Cholesterol etc.
•My eyes – Results from your retinal screening•My feet – Results from your feet screening
•My medication – What medication you have ordered in the past and recently
•My diary – A way to keep information on appointments etc.
•My recordings – You can record some of your own findings such as weight change or allergies, hopefully in the future to be given to your diabetes team to see what has changed
•My summaries – summaries of previous pages such as results or home recording that you can print off and bring to clinics as well as a list of things that you should expect to get done in a year (like a checklist) such as eyes screened, HbA1c , given support for smoking etc.
You are given a lot of information on each page which can be scary but is made much easier to understand though charts and graph, showing you how things have changed since diagnosis, and where you want to be in a very handy target chart on the ‘my results’ page.On the home page there is information on how to use the site, what diabetes is and the different types and the importance of monitoring. On each page (My lifestyle, My results etc.) there is a host of links for information such as: sick day rules, exercise, what type of diabetes care you should expect and lots more information related to you.
You are able to see what the doctors see but do not always have time to talk about in clinic and to see the progress you have made through the years. It is a great way to finally have the control over your own diabetes, as you are the person who knows the most about it.
Signing up can be a bit fiddly. Most doctors know about the service and advocate its use which makes it easier but to make things easier, first sign up online though www.mydiabetesmyway.scot.nhs.uk/ They will then send you a form for yourself and your doctor to sign. After that an email will be sent and you will have access to all of your information right in front of you.”
“My Diabetes My Way supports you to become more active in your own diabetes care and can provide you with the knowledge and motivation to self-manage, and acts as a reminder for what was discussed in your appointments, helping you set goals and make progress”